Family Archives - Lisa Hensley

Posted on February 9, 2021 by lisah Posted in Faith, Family

The Stories I Tell Myself

February is Rare Disease month. I don’t currently have any big plans to write about rare disease this year (although that could change) but it’s part of our lives. Our oldest son has a rare disease called Isovaleric Acidemia. It almost killed him when he was born and we were unaware that IVA existed. He carries those repercussions in his body to this day and he will his entire life.

{The short version of IVA is that your body has a defective, though present, enzyme that should function when breaking down protein, specifically the essential amino acid leucine (essential means it’s in all protein). Because the enzyme doesn’t function, instead of leucine being broken down and continuing to be metabolized, it gets stuck and produces isovaleric acid and ammonia. IVA is managed by a low-protein diet and a medical formula, among other differing things.}

This pandemic has been especially trying for him. He is not more likely to get sick but being sick is more complicated for him. We have ended up in the emergency room to get fluids over a stomach bug more than a few times. A fever of 100.4 slashes his daily protein intake because your body breaks down your own protein when you have a fever. We pay for AirEvac because our local hospital won’t admit him and/also because he needs more specialized care at a children’s hospital when he is sick.

Since being sick is much more complicated for him, we have taken extensive quarantine measures during the pandemic. We’re homeschooling. We see only a small handful of people. My husband has been working from home. We’ve done it outside, or masked, or on zoom, or not at all. While I’m grateful for all the good our family has still been experiencing, it’s been a long year.

Rare Disease Day 2019: when you’re reminded it’s rare

Posted on February 28, 2019February 27, 2019 by lisah Posted in Family, personal essay

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Rare Disease Day 2019: when you’re reminded it’s rare

In January, we got phone call from Micah’s nutritionist. She announced that the company that makes Micah’s medical formula was discontinuing the product, but she would send us some samples of another option. (There are only a few formula options for Micah’s disorder.) These samples would be similar to the old powder formula that he used as a baby.

It felt like the air was sucked out of the room. I was back in our apartment kitchen, looking at an immersion blender and a collection of small bottles as I mixed formula and measured each feeding into separate bottles. This was my nightly routine once we had tucked Micah in bed. Then I snuck away for a little bit of sleep before the alarm went off, waking me up to feed him again. Occasionally I would wake unexpectedly and panic for a few moments. Was it time to feed him? Had I already fed him? Had I overslept the alarm?

Posted on February 11, 2019February 28, 2019 by lisah Posted in Faith, Marriage

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Tracing Marriage Through the Bible

If you start talking about marriage in the Bible, most people are going to pull out Ephesians 5. The Ephesians 5 passage is beautiful and applicable; but it is not the first time marriage is discussed, nor is it the only passage that talks about marriage.

Let’s start at the beginning and work our way through the story. It is the same story that Paul is actually retelling in Ephesians 5- because God is always telling a cohesive story throughout Scripture- but I think we miss that because we rarely look at marriage anywhere else.

Right after God makes woman as man’s “ezer,” He proclaims the story of marriage. “Therefore a man shall leave his father and his mother and hold fast to his wife, and they shall become one flesh” (Genesis 2:24). This is fascinating to me because Adam didn’t have a mother or a father. But Moses wrote this hundreds of years after it happened in a context where all men getting married did have a mother and father. (Do a little digging into patriarchal cultures. Women were just absorbed into their husband’s family.) Instead of a woman losing all that she could be, the man was supposed to leave what he had and hold fast to her.

Posted on June 28, 2018June 27, 2018 by lisah Posted in Marriage

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How Marriage Works for Us

Monday night was date night. Our babysitter came over and the boys practically shoved us out the door. We jumped in the truck and headed to a restaurant that we reserve for date nights. It is not conducive for four small children; at least, not in our opinion. We talked about a little of everything over our Japanese food: dissertations, podcast interviews, homeschooling. Then we went to Lowe’s. Because every good date night ends at Lowe’s.

(Honestly, I haven’t figured out if that’s because we’re getting old or because we live in a small town. Either way, I usually come home with another houseplant so I don’t question the decision too much.)

When we were almost home, Justin mentioned that he really liked me. (Gag alert: we often have these conversations about being each other’s favorite person.) Of course, I started thinking about why our marriage works.

Short answer- Jesus, duh.

Posted on March 12, 2018March 13, 2018 by lisah Posted in Marriage

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A Toast on My Husband’s Birthday

My husband’s birthday was last Saturday. I had almost pulled off a half-surprise party for him on Friday night when one of the boys came down with a 101 fever. I think I was more bummed about that than he was.

If we had a big party and I got to raise my glass and speak (and I would since I’d be throwing the party), here’s what I’d say.

Posted on March 8, 2018March 8, 2018 by lisah Posted in Family

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Getting A Vision

My office belongings are currently in our front hallway. There are stacks of books and Justin’s bag of basketballs. There’s a rolled-up rug draped on top of the speaker, artwork leaning against the wall and shelves stacked in the corner. My notebooks and mugs of pens and books that I keep close lay neatly in the out-grown cosleeper.

We’ve moved the three older boys into their new room. Their new curtains will be here Thursday and we’ll hang them. I’m slowing pulling out the last of the things that won’t be staying in their new room. I’ve cleared a corner in the new office to assemble the crib one last time. I’ve got the measurements for the standing desk to go in the opposite corner.

I have a vision for both of these rooms. I want spaces that allow our family to flourish and thrive in our home. A space for the boys to grow. A space for Luke to sleep comfortably, undisturbed. A space for me to work in a somewhat organized fashion. (I can’t tell you how much I’ve missed my desk the past few weeks.)

Posted on December 28, 2017December 28, 2017 by lisah Posted in Marriage

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Celebrating Ten Years of Us

Justin and I are celebrating our ten year anniversary tomorrow. I distinctly remember writing our seven year anniversary post and it feels like the years are just flying by, regardless of how hard and slow they seem day by day sometimes.

One of my favorite memories of marriage this year is from when I was in labor with Luke. I was sitting on the hospital bed, holding a popsicle during a contraction, and he quietly walked over and took the popsicle from me. When I mentioned this to him several months later, he didn’t even remember doing it. But he knew me (this was baby #4 after all) and he was paying attention.