Lisa Hensley

When Micah was seven days old, the resident at UK Children’s Hospital told us she was transferring him to Cincinnati Children’s. In UK’s PICU (pediatric intensive care), they operated in-house. They shut down the entire unit to visitors, including parents, and performed surgeries right in the child’s room. When they were prepping Micah for transfer, we were told that they were breaking the rules to sneak us in the back to see him before transport despite an operation being in progress. You might be tempted to think that was considerate of them, but really they were concerned that he might die during the trip. Tears trickled down my face as I looked at my infant covered with tubes and wires, but the resident in the corner sobbed as she watched.

Later that same evening at CCHMC, a team of specialists wanted to put Micah on dialysis. His ammonia levels were so high that nothing else would clean his blood. The problem was that he was technically too small for their smallest dialysis machine. It would remove too much blood from his body. They had a plan to add extra blood to minimize the risk, but the risk was great. We signed the papers anyway. The other option was to watch him die without trying anything.

Risk is something that has gone hand-in-hand with Micah’s life. I’ve watched him with bated breath for eleven years. His runny nose affects his behavior. A low fever starts a sick day protocol and murmured prayers as I stress clean. A simple stomach bug lands him in the ER for fluids. Risk is inherent in him being alive. Not just him, but all of us, though often to a lesser degree.

One of my goals for this year is to write publicly every week. Most often that is here, excepting the week I send out the monthly newsletter. I need both the encouragement to write consistently and the discipline of writing longer form pieces. Last week I hadn’t written much, mostly because I was discouraged. I feel discouraged about raising my kids. We’ve been at this for a while and it still feels like we are doing the same work. I feel discouraged about the conversations about women and the church because sometimes it seems like we’re still having the same conversations. I feel discouraged about my own sense of vocation because I can’t see a path forward. I’m still living these same days.

After some thought, I’ve realized that much of this discouragement is because I can’t see an end line. There’s no banner stretched out over the finish that I’m straining toward in any of these areas. The boys will weigh on my heart as long as I’m alive, even after my work of raising them is complete. There will always be those people who are happy to subjugate women and slap the name of Jesus on it. My own path forward may always feel like a mystery. I’m slowly practicing obedience and faithfulness in the everyday and not analyzing other metrics like success or notoriety or feelings.

Last week, I started reading Keep Going by Austin Kleon. In the introduction he says “the question is always the same: How to keep going?” To frame it that way helps me. This is what life is. Life is beautiful and difficult, joyful and terrible, boring and ecstatic. These days can be both excruciating and strengthening. But the call is always onward because I am actually going somewhere, even if it’s not a somewhere I was taught to look for.